Saturday, May 23, 2009

Graves Disease

It's weird to have finally found a small bit of time to update about my doctors appointment yesterday. The past 48 hours have been really busy. Thanks for the comments from my readers who wished me good luck at the doctor and said they are praying for me. I really appreciate it.

I liked the endocrinologist very much. He was a confident guy but not arrogant. He spent alot of time talking to me and explaining exactly what he thinks is wrong. Right off the top, after reviewing my past medical records and reading through my symptoms, he said I have Graves disease. I was a bit shocked by this diagnosis, because I don't have all of the symptoms, bulging eyes especially, thank the Lord, but you can have very few symptoms.
My thyroid is double it's normal size. He convinced me that I do not have an adrenal problem. I had been looking forward to checking out my adrenals, to see if I had anything on them and was also going to do a saliva test to find out if they were functioning. He said, if I had anything on my adrenal glands that it would have the opposite affect, my body would make too little TSH. If my adrenals weren't functioning, I would have infertility problems and would never be able to carry a baby to term, we all know that's never been a problem.

He told me the reason my body never responded to the medicine PTU and my TSH level remained the same over the past 3 and a half years is because I was never given a high enough dosage. With my having this condition for so long, he said it needs to be dealt with through means other than medicine. After so long, the medicine is not going to fix it. This leaves me with either radioactive iodine treatment or surgery. Although the radioactive iodine treatment is simpler and less risk than surgery, it takes longer to get the hormone levels regulated and it is complicated since I have small children. I wouldn't be able to be around them for 2 weeks, and I would have to take many precautions from passing on the radiation to others.
Given where I am at in my life, with 3 small children, he recommended I have my thyroid surgically removed. I totally agree. At this point, I was just relieved that someone acted as if this was fixable and common. He strongly felt that my weight loss trouble is directly related to my thyroid problem and that when I get that resolved I will get the results I want so badly. It was like a huge weight was lifted off my shoulders after talking with him.

Much of what he said, is still sinking in, like the thought of my throat lying open. The thyroid is right in the middle of your carotid artery, trachea, jugular, and vocal cords. YIKES!! One great thing about all this, is a well known Ear, Nose and Throat surgeon is a family friend of ours. I have alot of peace about everything because I feel comfortable with him doing my surgery.

As I mentioned before, I'm ready to get on with all this. I feel at peace with this decision. If I haven't answered a certain question you might have feel free to comment and I'll get back with you if I know the answer. Thanks again for the prayers keep them coming. I'll keep you updated as I go along.


mummyof5monsters said...

praying in Australia xx

Kristen & Cliff said...

We will be praying for you all Miranda, I know your family is here but if you need help with kids, cleaning, whatever let me know!

Jillian T. said...

Miranda, I am glad you were finally able to get the answers that you had been seeking for so long. Best of luck with the surgery. We will keep you in our thoughts and prayers!

Bonnie said...

Wow, It must feel good to have a diagnosis and now you can take action.

When do you go into surgery?I would like to pray for you.